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Aortic Aneurysms – Introduce yourself & meet others

Aortic Aneurysms | Last Active: 10 hours ago | Replies (543)

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@robert6767

@hopeful33250 Good morning. I have no problem sharing my story and what happened to me. To be honest I am glad to have found this, I have looking for some sort of support ever since everything happened to me. At the time I don't think I had any symptoms. Even the night it happened I felt pretty tired, however I had been out of town the day before and had been back in town a few hours, just thought I was tired from traveling. I was told if I had just went to bed that night off instead of going out I would have never woke up the next day. That's probably the scariest part of it all. Because I chose to have dinner with friends and watch a sporting event with them and was not home is the reason I am still here today. Since everything at the beginning it was kind of hard to get going ( at least for me). I am 6'0 and 220. I was shocked at much I had lost in just 10 days in the hospital. I remember the first day they got me up walking and the entire time saying that this shouldn't be this hard. That first time the nurses got up and walking I think I walked a total of 75 feet (maybe). I couldn't believe that walking was the hard and two that little distance whipped my butt. The road back isn't terrible at least it wasn't for me, the hardest part was coming to terms with what had happened. I really glad I found this yesterday. I really need this. It really stinks that there is nothing for us survivors in way of support groups.

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Replies to "@hopeful33250 Good morning. I have no problem sharing my story and what happened to me. To..."

@robert6767

I so appreciate you sharing your story. I'm glad that you found Connect and have a place to share your experiences. You are correct when you say that it is very difficult to go through a life-altering experience as you did and not find other survivors to share with. As you have shared your experience you will undoubtedly help others.

As I read about you spending several days in ICU I would suggest you also take a look at discussions we have at Connect on Post-ICU experiences. Here are the links to those discussions:

https://connect.mayoclinic.org/discussion/post-intensive-care-syndrome-pics-lets-talk/ and
https://connect.mayoclinic.org/discussion/what-did-you-find-most-surprising-once-you-were-out-of-the-icu/. In these discussions you will meet an ICU nurse, @andreab. You will find her very responsive to your experience and your current feelings.

Please feel free to share in these discussion groups as well.