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Aortic Aneurysms – Introduce yourself & meet others

Aortic Aneurysms | Last Active: 47 minutes ago | Replies (441)

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@segagirl

Like many others, the diagnosis of ascending aortic aneurysm frightens me. Moreover, my current situation isn’t encouraging:

Adrenal adenoma under control with meds for over 10 yrs
4.1 sized slow growing AAA
PFO with ASA
Factor V Leiden
Mild CKD secondary to nephrosclerosis
Migraines with aura after age 50
About 7 years with high BP / low potassium due to adrenal situation - damage done
Well controlled BP for over 15 years
Urinary retention
Lost 50 lbs and kept off for 10 years but slowly gaining due to stress eating over all the above conditions

Feel doomed. Horrified of potential open heart surgery, stroke or dying during operation.

My mom had a stroke and a-fib. She passed away after 3 months in ICU. 25% brain bleed is what she had.

I worry a lot as it is, so I’m seeking therapy to cope with anxiety about my health and mortality.

Besides my health, great personal life.

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Replies to "Like many others, the diagnosis of ascending aortic aneurysm frightens me. Moreover, my current situation isn’t..."

Sounds v similar to self but not adenoma/adrenal dysfunction. Metabolic syndrome (15+ hrs fasting hypoglycemia, so wonder about insulinoma -grandmother had one. Also early heart disease in family, I have Aaa & mild regurgitation too, vasomotor rhinitis, factor 5, NASH, dry eye, osteoarthritis, si joint dysfunction. Have high ANA (just got the Ana 12 test waiting for results.)

Hang in there. Try not to be scared of procedures -they are pros. Is there a way to connect the dots. For ex, I feel my condition is EDS or a vascular disorder so getting checked, Therapy & mental health care is essential. Aortic valve fixes & AAA operations are successfully fixable fr research.

Hello,
That is a pretty big punch list of issues. Hope you can correct as many as possible. Some I don't know what the acronyms mean. I had real bad headaches before my aneurysm repair and the issue went away completely after the surgery. They were so bad, it was just go to bed and sleep it off kind of thing. I would get them at work and would go sleep in my car. It was real problem. Maybe try some lite exercise if the Dr. approves. That will help with the weight and bring the BP down. I walk 3 miles a day on a treadmill where I can monitor the speed and incline which you can't do just walking on the street.

All the best.

Bruce
Texas

Reading some replies, it sounds like we’re in prison, saying to each other the litany of crimes we’ve committed and that’s why we were incarcerated. Maybe some of us will get off with good behavior! I think we have to think of ourselves as the ones who were diagnosed, the ones who have been pinched and prodded for all of our frailties and now we know more than most people. I have some perennials in my garden that come up every year after many years the blooms are not as good as that used to be but they still smell sweet the bees still come. I’m not going to dig them out and replace them. Anything that survived that long it’s a wonder!