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Carcinoid Cancer and working

Neuroendocrine Tumors (NETs) | Last Active: Jul 31, 2018 | Replies (32)

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@hopeful33250

Hello @ajnaudra

It has been a while since you first posted about your NET surgery and treatment and I've been thinking about you. I hope that you are adjusting to this diagnosis and learning more about it. Did you contact Dave Vickery for some more information about the support group?

I hope you are feeling better. I would love to hear from you when you have an opportunity to post.

Teresa

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Replies to "Hello @ajnaudra It has been a while since you first posted about your NET surgery and..."

Hello,
I have been suffering from terrible vertigo. No understanding why but we think it is from lack of sleep at times which is mostly caused from pain due to fibromyalgia.
I did speak with Dave and received information about the support group, unfortunately it is quite a distance from me. He did give me great info though and was great to talk with someone who has loafs of info and many years of experience.
I would also like to share some wonderful news.... a recent CT scan showed some miraculous results! There were 5 tumors in my live and by divine mercy, there are 2 left!!!! My Oncologist is very happy as well. She said she would like to credit the Sandostatin but cannot say that’s what it was. So for now, I feel it is all the wonderful prayers said on my behalf!
Warm regards to all,
Audra