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audra (@ajnaudra)

Carcinoid Cancer and working

Neuroendocrine Tumors (NETs) | Last Active: Jul 31, 2018 | Replies (32)

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@mollie59

Hello, I too was diagnosed with Carcinoid Center in May of 2017. Mine is located in the liver. I am able to get my sandostatin injections at my hometown hospital. I was given a tube of lidocaine lotion to apply to my injection sites 30-60 min before, I live close so can apply it at home, however, I’m sure they could apply it for you. This made a 100% difference for me! I no longer had the pain or the sore hips for the day following. It is worth a try. Good luck to you.

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Replies to "Hello, I too was diagnosed with Carcinoid Center in May of 2017. Mine is located in..."

@mollie59 Hello Mollie:

Thanks for the great suggestion regarding the Lidocaine lotion prior to the injection!

Teresa

Thank you Mollie. I was not aware they could issue a topical anesthetic for this. I get another injection tomorrow so I will ask. Hugs and prayers for you. Please tell me more about your road you have traveled with this disease.

Hi Mollie,
I asked my Dr yesterday and she wrote a script maybe an hour after she received the request. I will use it today before the injection and let you know how it works out!

Mollie,
The cram worked like a charm. I can’t thank you enough for the suggestion! Hugs

The nurses may be giving it to you incorrectly. If you get a lump apply heat. It has to go into a muscle. Talk to your doctor about it. Plus get in a system – even months right cheek—odd months left cheek. Every other time it should vary where – which cheek you get the shot. My husband has been getting it for a year and half and only twice did he have a problem. One time it was up too high and he suffered, the doctor said if not given correctly it doesn't do any good. So you see how important this is.

I am so happy to hear it worked out for you. My local nurse told me there was no sense in having the pain. Continued prayers to you…..