I see that this is your first post on Connect, welcome!
I am a volunteer mentor for Connect and I have had 3 surgeries for NETs in the duodenal bulb. While I have not had the extensive surgeries that you have experienced, I can understand the problem of trying to work when you have chronic illness and all the symptoms that go with carcinoid syndrome. I, too, am a resident of Michigan, Oakland County, so we are almost neighbors!
What hospital are you being seen at? Who is your doctor? Also, have you contacted Michigan Vocational Rehabilitation? They can sometimes help train disabled people for jobs that are better suited for their health needs. I’m not sure how you get connected with them, but give them a call.
Also, regarding disability benefits: have you consulted an attorney or a advocate agency to help you get your social security disability benefits? They can be quite helpful (and persistent) at times.