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DISH (diffuse idiopathic skeletal hyperostosis) or Forestier's

Spine Health | Last Active: Sep 13 4:44am | Replies (221)
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@wendysuej

I stumbled upon a discussion about DISH disease, but once I registered for this site and logged in, I couldn't find it anywhere. I was diagnosed 2 1/2 years ago, and I so desperately want to connect with others who have this dreaded disease. So many sights have misinformation, such as saying there is little pain or symptoms associated with DISH. That could not be further from the truth. I am in constant pain, and my mobility becomes more limited every month. Why isn't anyone researching this disease or trying to learn more about it? We need help! Not just pain meds (which I refuse to take because I want some quality of life!).

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Replies to "I stumbled upon a discussion about DISH disease, but once I registered for this site and..."
Colleen Young, Connect Director | @colleenyoung | Aug 27, 2018

Welcome to Connect, @wendysuej
I have moved your message to a recent discussion about DISH so that you can connect with @franknstein and @ardithann . There is also this discussion about DISH that may interest you.
- Does anyone have DISH and /or OPLL? https://connect.mayoclinic.org/discussion/does-anyone-have-dish-and-or-opll/

How do you manage your pain?

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franknstein | @franknstein | Aug 27, 2018

Hello, Heat, ice, rest, tylenol. These do not always work either. My largest problem area is my spine so a few times a week I just lay on my back on a hard surface to relieve the pain.
As far as managing the pain; meditation, distraction, exercise all will help.
Good Luck

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kellyfennell | @kellyfennell | Oct 28, 2023

I so agree! I was recently diagnosed with DISH myself and find info really lacking. I came to this spot hoping to find research studies. I may be interested in starting one myself.

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