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Watching a Meningioma Brain Tumor
Brain Tumor | Last Active: Apr 18 2:00pm | Replies (259)Comment receiving replies
Hi @dusktodawnisparkle, I'd like to add my welcome. You'll notice that I moved your message to this existing discussion about Watching a Meningioma Brain Tumor. Click VIEW & REPLY to read through past posts.
You might also be interested in reading the posts of members like @robinem @ees1 @cnesselroad and more in these related discussions:
- Meningioma and Cavernoma: Stressed Waiting and Watching https://connect.mayoclinic.org/discussion/meningioma-and-cavernoma/
- Meningioma - I'm scared to watch and wait https://connect.mayoclinic.org/discussion/have-had-a-mri-that-revealed-a-large-structure-that-is-presumed/
Being told that watchful waiting is your treatment option can be stressful. In actual fact, your medical team is not inactive, but rather actively monitoring you. This is likely because the risk of treatment is more dangerous than the possible benefits. I prefer the term “active surveillance” rather than “no effort”.
I'm unclear about one thing in your post. Are you currently experiencing vision issues?
Replies to "Hi @dusktodawnisparkle, I'd like to add my welcome. You'll notice that I moved your message to..."
I was diagnosed in February. My tumor was near my spinal cord. I have a sister that lives near Salt Lake City so I had surgery and radiation treatments with chemotherapy at the Huntsman Cancer Institute. My suggestion is to get to a cancer hospital for the best treatments! I have to see my neurologist every month and am still taking stronger doses of chemo pills. I am scheduled to have an MRI done every 2months. I'm also seeing a physician therapist to regain my strength.
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Hey how are you doing? Thank you for responding. And yes I was a little unlear about the vision. They had told me nothing to worry at that very moment. I was like well...that's my vision your actively monitoring...like dont mess around. I want to always be able to see my beautiful daughter. But the answer to your question is yes...some...on some days my right eye will go blurry...I mainly notice when I'm up and around..just messing around online in the morning..my opthamalogist says the tumor is making contact with the optic chiasm..let's come back in 3 months...well it's been right at 3 months. My left eye is clear when I cover my right eye. When I switch totally blurry...if I had to rely on that eye to read it wouldn't happen..I noticed today my reading glasses didnt really help either. It did 3 months ago..the neurologist says could be an age thing ..could be the tumor...if one more person. Tells me anything with this tumor could be agreed related instead I'll cry. I turned 51 today. I have trouble concentrating really bad the last 2 years. What brought me to get the MRI IS HEADACHES...bad...I hit my head 2 years ago....so hard..on my shed wall coming off of a step and lost balance. Messed my neck up real good...I was shimmy feeling for 3 days...didnt go to hospital...kept on truckin... probably not a good thing to have done..anyhow...I'll let ya catch up..but from that I have a reverse curve in neck going on ...ddd..neuropathy...raynauds ..fibromyalgia. ddd in lower lumbar with compression fractures..oh and carpal tunnel syndrome. I probably forgot something. Lol..but all these things have came about it seems since I hit my head. I know some is age related of course. My Pcp says I just rushed things along when I hit my head. I drives me nuts to sit stand lay down..I'm just all over some days..filled for disability..denied 3 times..just got denied by appeals council. My lawyer was worthless. They didnt know about the tumor. Been seeing docs for 2 years trying to find out what is causing headaches...then they found tumor right after my hearing...