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Watching a Meningioma Brain Tumor

Brain Tumor | Last Active: Jul 2 2:51pm | Replies (259)

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@marcyprof

Hello @dusktodawnisparkle, I'm sorry to hear about your diagnosis. A brain tumor is never good news. I myself have a Glioblastoma diagnosed in the fall of 2018 located behind the optic chiasm. It is an aggressive tumor with a diagnosis of impending death. I tell you this because, despite what the doctors say, I am still alive (very much alive) and to this day, I have not lost any cognitive function or vision problem. (After my chemotherapy treatments, I happened to have a few short episodes of visual epilepsy. It lasted a few minutes (10 minutes). It doesn't hurt. It's just strange because part of the vision changes during the seizure but then returns to normal.
I like to think positively, (it helps me get through the disease) so, with each visual epileptic attack, I told myself that it was a sign, a good sign that my chemotherapy was working. I have learned in recent months that current medicine does not know much about brain tumors, so be skeptical, especially about the bad news. Your body is resourceful and it wants to heal. I don't know much about meningiomas, but I do the ketogenic diet, and I take certain dietary supplements (ask a certified naturopath) that control tumor growth. I now live with this tumor as if it was of a chronic disease and I try to do everything not to feed it (a bit like a plant that we do not water so that it does not grow). It seems to work pretty well. For the moment, my tumor remains quiet and does not grow.
Hope this can help you, good luck and most of all, keep your spirits up because it helps you and your brain fight this meningioma.

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Replies to "Hello @dusktodawnisparkle, I'm sorry to hear about your diagnosis. A brain tumor is never good news...."

Marcy prof... I just joined Connect. I’m 54 and I’m in the Very beginning stages of testing for a brain tumor above my right eye. There’s much more going on (that causes pain and loss of bone) as my skull is no longer holding my brain in place. I haven’t even found a specialist yet. (New insurance - but luckily... a PPO.)
Anyway - my question- What do you do for pain? (And can you still drive?). I will be seeing a naturopath as soon as I can.
I’ve been spending most of my days lying down with ice packs around my head. I’ve had headaches the past couple months... but progressed quickly in the last few weeks to almost unbearable. (Very close to a blinding Migraine- but not yet crossing that ‘line’).

I know I will have a Billion questions in time. But I’m just grasping the fact that I need to tell... my children. (I think the rest of my family is strong enough to handle the news. Not worried about them. And my parents will probably just forget all about it the next day.)