the ENT surgeon who works with the neurosurgeon refuses to operate, too many risks for me so I will see what the oncologist says tomorrow

I had a 10 cm frontal menigioma removed 10 years ago. It was along the middle cerebral artery, so a small ridge was left. I have had follow up mri’s for 10 years with no new growth. That’s positive. However, it was not until I couldn’t walk or talk anymore that anyone believed me.. I attribute that to being in a pain management program for my back. My leg weakness... just did another epidural or another ablation. My inability to talk, to much pain medication. Sent me to an orthopedic doc for a second opinion... I saw his notes.. he said he couldn’t tell if I was faking or not. I fell down continuously, couldn’t remember anything, was emotional ( all things related to frontal lobe functions were/are impaired) my kids said something was wrong but my husband was in complete denial. I am a RN with a masters degree... so I knew all the buzz words, name of reflex, etc. anyway, finally when I didn’t answer the phone one day (I was 54) my husband came home took me to ED ( my FP just shrugged) did a ct scan , then everything went into motion. I have few memories after this except having 3 more MRI’s that day and having a 14 hour brain surgery two days later. I had a midline shift of my brain. I have had 3 years of intermittent neuro rehab. I lost so much because no one would believe me... I have not worked since, cannot remember anything from last 10 years except vaguely. I have had such a difficult time dealing with all my ‘frontal lobe functions’ losses. We moved 3 times since then so never really found continuity of care, which is important. Thanks for allowing me to share, it makes me upset as I read through these posts that people, people who have symptoms get ‘ well will just watch it’. I understand on many levels the rationale behind this, but please don’t let yourself be compromised like I was completely and irrevocably. You know your body best