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Watching a Meningioma Brain Tumor
Brain Tumor | Last Active: Jul 2 2:51pm | Replies (259)Comment receiving replies
My daughter had a medulloblastoma at the age of 7 with resection, chemo, and radiation. She is now 29, a college graduate and struggling. This summer they found a parasagittal meningioma. It's small but it has grown from 1.5 to 1.7. She is having many symptoms. Ever since July, the left side of her body is numb and painful, along with the left side of her face. She struggles with headaches, dizziness, double vision sometimes. Many days she is not able to drive. The neurosurgeon says the meningioma is not the problem. The neurologist doesn't know what the problem is either. I think we need to get another opinion. Her quality of life is getting worse. I feel like she gets passed back and forth from the oncologist to the neurologist and the neurosurgeon. Suggestions or Thoughts? We are in South Florida.
Replies to "My daughter had a medulloblastoma at the age of 7 with resection, chemo, and radiation. She..."
Hi, @cathys – I would like to add my welcome to Connect along with @lisalucier and other members. I'm glad to hear that you are advocating for your adult daughter as I know it must be difficult for her as well as you. I'm wondering if she has been treated by Mayo Clinic. If not, it would be an excellent choice for a second opinion if the neurosurgeon says it's not the problem and the neurologist doesn't know what the problem is. If you would like to seek help from Mayo Clinic, contact one of the appointment offices. The
contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.
If found some information that may be helpful.
Meningioma Diagnosis & Treatment - https://www.mayoclinic.org/diseases-conditions/meningioma/diagnosis-treatment/drc-20355648
PubMed - Multimodal Treatment of Parasagittal Meningiomas: A Single-Center Experience
-- https://pubmed.ncbi.nlm.nih.gov/28156245-multimodal-treatment-of-parasagittal-meningiomas-a-single-center-experience/
Hope this helps...
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Hi, @cathys - welcome to Mayo Clinic Connect. That is difficult to be feeling like you are being passed back and forth between the oncologist, neurosurgeon and neurologist. Seeing your adult daughter struggle with pain, numbness, double vision and dizziness must also be hard, as her mom.
I'm hoping other meningioma patients or their loved ones here in this discussion will have some thoughts, suggestions and support to offer as you support your daughter. Please meet @deblee @robinem @pegorr @sanderjakidd @averagewoman and others here. I'd also like you to meet @johnbishop.
Is your daughter working at this time? If so, how is that going with her symptoms?