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Watching a Meningioma Brain Tumor

Brain Tumor | Last Active: Apr 18 2:00pm | Replies (259)

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@jill333

I had a right frontal lobe meningioma in 2001. Because of the size of mine (5cm, about the size of a small orange) I was also told that it had probably been there for at least 20 years. I found out about mine by having a grand mal seizure out of the blue. Because it caused a seizure and because there was no way to know if it was benign without surgery, I had mine surgically removed. Fortunately it was benign. I had two small recurrences in 2017 and had gamma knife radiation on them at Mayo in Rochester. How did your doctor know it was benign? Did you have a surgical biopsy?

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Replies to "I had a right frontal lobe meningioma in 2001. Because of the size of mine (5cm,..."

No biopsy and none was recommended. That’s kind of why I’m still uncomfortable of the diagnosis and the wait and watch. I’ve also been diagnosed with myoclonus that the neurosurgeon says has no connection. And also a nodule on adrenal gland, which I’m having tests run on as we speak. Seems awfully coincidental that all this crops up at once. That’s why I’m considering going to Mayo.