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Watching a Meningioma Brain Tumor

Brain Tumor | Last Active: Apr 18 2:00pm | Replies (259)

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@donald1214

I’m reading through these comments since I’ve been diagnosed with a benign right frontal lobe meningioma. They say that from two different CTs that the tumor has been there some 20 years judging by the calcification formed around parts of it. I can’t have an MRI due to my pacemaker, so that eliminates closer examination. My neurosurgeon recommends the wait and see mainly because the tumor has been there so long. It was found accidentally while searching for a reason for severe jerking of my body all of a sudden, then continued episodes of one part of my body or another. This, along with a “full” feeling in my head and mild headaches. Finally diagnosed with myoclonus, but still no source of where it’s coming from. Hence, the brain CT and discovery of the tumor. The wait and see has me pretty jittery because it doesn’t make sense that there’s something taking up space in my skull that shouldn’t be there and why shouldn’t it be removed. Just sign me “waiting “

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Replies to "I’m reading through these comments since I’ve been diagnosed with a benign right frontal lobe meningioma...."

I had a right frontal lobe meningioma in 2001. Because of the size of mine (5cm, about the size of a small orange) I was also told that it had probably been there for at least 20 years. I found out about mine by having a grand mal seizure out of the blue. Because it caused a seizure and because there was no way to know if it was benign without surgery, I had mine surgically removed. Fortunately it was benign. I had two small recurrences in 2017 and had gamma knife radiation on them at Mayo in Rochester. How did your doctor know it was benign? Did you have a surgical biopsy?