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Watching a Meningioma Brain Tumor

Brain Tumor | Last Active: Apr 18 2:00pm | Replies (259)
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@mrector

@kmart I am praying for you. I'm sorry for your loss of your daughter.
After surgery I was in ICU for 2 days. My left eye swelled shut after surgery and face was swollen. I was on morphine so I don't remember a lot. I don't remember being in pain. When I came home I took Tylenol for any pain I had. I was very weak so I stayed with my mom for a few days. I had no energy and slept a lot. After about 7 weeks after surgery I started feeling like me again. My energy level is still not great but I also have a bad back, so that doesn't help. My vision is getting worse in my left eye but my neurosurgeon said that would happen. I will have MRIs every 6 months for the rest of my life to monitor the remaining tumor and if it grows I will have radiation therapy. If you have any specific questions please ask and I will try to answer them. I'll post a picture of me almost 2 days after surgery so you can see. It looks worse than it felt

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Replies to "@kmart I am praying for you. I'm sorry for your loss of your daughter. After surgery..."
mrector | @mrector | Dec 8, 2018

I wish we lived closer too I would love to have a group where we could meet and talk about the recovery and what to expect in the future. This is definitely a life changing experience

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kmart Kay Martin | @kmart | Dec 10, 2018

Wow, you sure have been through a lot. Stay strong and proactive as you sound like someone that can conquer whatever challenge you are presented with. I do have questions that if you can answer I will greatly appreciate. 1. When do they shave the head? A day after surgery did they allow you to wear your own clothes? How quickly did they get you up after surgery? How did you handle the steroids? How long were you on steroids? Is it strictly pain in the incision area? How long did it take for the pain to subside? You mentioned that you were on morphine and don't remember a lot. I was given morphine when I had a total knee replacement and it made me very sick. Were you nauseated? If so, for how long? Thanks so much. Where did you have your surgery?

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