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Watching a Meningioma Brain Tumor

Brain Tumor | Last Active: 5 days ago | Replies (260)

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@gloriajean

What now keeps me somewhat on track is that I was only on the operating table for 1.5 hrs..- incision closed with 34 staples - main chewing muscles on the left side of my face - oh, I can go on and on. I was not informed about so many elements of my "short" brain surgery! My balance is ruined BUT then my cogntive abilities are very good and getti g back to where I was before I had the deadly seizure.
I have been grieving about the tumour and now I am in the angry phase of this process.
And I have not even touched upon the severe depression I endured for several months fter having my brain opened up.
Hard, hard decision to be reached without family or support.

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Replies to "What now keeps me somewhat on track is that I was only on the operating table..."

Gloria Jean my story is similar to yours in the beginning. The ER admitted me after finding a mass in my brain after a ct scan. I felt like they were pushing me toward brain surgery the second morning after admission so I checked myself out with a possible diagnosis of acoustic Neuroma 3.3 cm
I needed more insurance and to do my research. I am 68 years old and have had a # of surgeries and hospitalizations. I knew i might be facing a serious surgery and wanted a very experienced surgeon to drill into my head. I called Mayo Clinic at the advice of a doctor friend of mine. My husband drove me the 7 hours to meet with surgeons. I believe i had the 2 best in the west. A few weeks later I went for surgery armed with a lot a research and additional insurance. The surgery lasted 8 hours and all four of my adult children were there along with my dear husband of 42 years. It was so sad to learn that you went through surgery all alone. After 5 days in the hospital i went to rehab for 8 days. I am now in the 3rd week of home health care and think i am progressing well. I am hoping to be able to drive again but my balance needs more work. I have to fight feelings of self pity and some anger at times but I turn to doing things that cheer me up and press on.

I had a 9cm brain tumor removed 6 weeks ago. It is wrapped around my carotid artery and optic nerve on my left side. The neurosurgeon could only remove 85% of the tumor. I have lost vision in my left eye due to the tumor. My jaw is still really bothering me where they had to cut and remove tumor. I can't open my mouth wide and having a hard time eating. I have a lot of pain when I eat. Is this normal and just part of healing? It hurts in my tmj area temple area. I am good to a neuro-opthamologist October 15th to see what else to except with my eye. The neurosurgeon said I will eventually go completely blind in left eye so I hope to learn more on October 15th of what to expect.