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Watching a Meningioma Brain Tumor
Brain Tumor | Last Active: Jul 2 2:51pm | Replies (259)Comment receiving replies
When I first heard I had a brain tumor, I thought I was the only one. I've learned, meningioma's are very common. Some grow, some don't. Mine unfortunately was pushing against my brainstem and had to be removed. Not all was removed so I continue to have MRI's. I can say I'm no longer claustrophobic!
Replies to "When I first heard I had a brain tumor, I thought I was the only one...."
Hi. I’m sorry about your diagnosis. Are you symptomatic? Is yours in the foreman magnum? I ask because you mentioned the brainstem. Foreman magnum meningiomas are very rare. I was diagnosed a year and a half ago and the only person I’ve connected to lives in Egypt.
I had a failed craniotomy last June. They got all the way in, but once they reached the tumor, it was deemed too dangerous to even biopsy. It was fully incased in nerves...like a tangled birds nest. Had he tried to get a biopsy, I would have woken up with a feeding tube and the inability to speak or swallow.
I am a professional singer/entertainer and I’m glad my surgeon made the right call. I was treated by a renowned doctor in Los Angeles. We still don’t know if it’s grade 1 or 2 or if it’s anaplastic.
My brother succumbed to anaplastic astrocytoma with glioblastoma just one month before my diagnosis. It is thought that his too started as a meningioma.
It’s been an emotional rollercoaster to ay the very least. My brother and I were very close.
I’m in the process of seeking a 3rd and 4th opinion. The craniotomy was no picnic and mine has since collapsed making the pressure even worse.
I have good days and some very bad days. I’m still working because I believe a body in motion stays in motion...but it’s getting harder. My legs and arms are getting weaker by the day and the pressure is immense. There is a major artery involved in the tumor and I fear stroking out.
I’m a tricky and difficult case. Waiting is torture but the thought of another failed surgery holds me back.
Have they discussed radiation with you?
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I'm 37 years old and found out I have a left frontal meningioma that is 6mm in size. I understand this is a smaller meningioma but I'm freaking out. I know that as little as 2 years ago this was not in my brain because I had test ran due to a mass on my Prada glands, which included scans on my brain. I have had 1 seizure and have been dealing with forgetfulness, depression, headaches and irritability. Does anyone know if these are symptoms of the meningioma and if they are if I should seek a second opinion? My last MRI scan was in November and my neuro doctor doesn't want to repeat scan until May, and I reported all these new symptoms to him. Thank you for any help, I'm feeling Scared and feeling alone, so thank you for any reply