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Diet for diabetes and stage 4 CKD - very confusing.
Kidney & Bladder | Last Active: Oct 23, 2022 | Replies (37)Comment receiving replies
Thank you, @cehunt57, for telling me your story. It is very helpful. Do you mind if I ask your age? My nephrologist hasn't discussed any of this. I'm beginning to realize that his main focus is on his current dialysis patients. He has said nothing about diet; my gfr is around 21, and he has not even mentioned dialysis or transplant at this point. He is the department head at a large university medical center! I think I will have to be more assertive. My father wasn't diabetic, but died from ESRD after 4 years on dialysis. Thanks again for your input.
Replies to "Thank you, @cehunt57, for telling me your story. It is very helpful. Do you mind if..."
.....physical, lab work, routine endocrinology & nephrology follow ups plus a dental cleaning and exam. I'm doing well and am stable. Last July my GFR was 14. In October it was 35 and is currently 30. I am blessed!
Belated birthday greetings, and glad to hear you are doing well. Your GFR increase must make you feel very good!
@valb68, I hope that you found some useful information in the resources that I included a couple of days ago.
I want to encourage you to follow up on your plan to get an appointment with a dietician. Your nephrologist should be able to connect you with someone who is knowledgeable of your condition, and best able to work with you. Being diabetic and stage 4 should qualify you for some training and support.
Has your nephrologist indicated any kind of future plans for your situation? How often are you seeing your nephrologist?
Rosemary
Are you saying that gfr got better, if so what did you do. Thanks
@nellieb312, Welcome to Mayo Clinic Connect. I am happy that you have found this discussion group. I want to help you find answers to your question and I am going to assume that you are directing this question to @cehunt57 about her GFR numbers. That is a very inspiring change, for sure!
I invite you to read and/or join in any conversation on any of the discussion groups that look interesting to you. It is perfectly correct to join in anywhere. If you want to direct your comment or question to a particular individual, just copy the @name of that person so they can know that you are speaking directly to them. But, that is an option, and not necessary all of the time.
Are you realizing changes in your GFR's? What other questions would you like to ask?
Let me know what I can do to help you.
Rosemary
@nellieb312 yes my GFR did get better from 14 - 35! I did not do anything different than what I’ve been doing for the past 2 years other than an attitude adjustment. I’m a Christian and have given my life over to God for whatever His purposes for me are. I believe in eternal life in heaven with God when this life & body on earth are done. I still believe that, but I’m a bit of a control freak and up until about a year ago I was insisting that I’d rather die than live with any kind of dialysis. It occurred to me that maintaining that stance was not really yielding my life to God’s plan for me. I was being sinfully stubborn. It sounds unbelievable, but once I confessed this and became agreeable to God’s program my GFR improved! I’m still listed for kidney transplant (currently inactive status), still looking for a living kidney donor and hoping for a preemptive transplant. I’m trying to take good care of myself and I’m hoping/believing in God’s best for me.
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I'm 61. My Bday was Wednesday 2/7/1957. In the past 3 weeks I had a physica