I too have diabetes and “esrd”
It is very confusing my dialysis makes my taste buds disappear I don’t have a taste for anything except cookies and sweets. It’s crazy I have started on a protein bar at each dialysis because I have no feeling to eat after dialysis. Just wanting to live right for whatever time I have left i’m Not getting a transplant. I,m just living out my life in the best way possible.

Welcome to Connect, @weezielou
Living with diabetes, end-stage renal disease and dialysis, and making good nutrition choices must be challenging, especially with your sense of taste is affected. I'm bringing @2011panc and @gaybinator into this discussion to see if they may have some experiences to share.

WeezieLou, do you have type 1 diabetes? How do you manage balancing your taste for sweets and sugar counts?

Wish you well in your endeavour to make good food choices, @weezielou. Any help from a dietitian?

@weezielou, When I was on dialysis due to ESRD prior to my transplant, there was a nutritionist who consulted with me about how to eat. There were also some nutrition drinks that were recommended and helpful when I did not want to eat - I had very limited taste.

I admire your courageous attitude.
How are you feeling? What are you willing to share about how you are fulfilling goal to live your life best way possible
I think you could teach us a lot. I would enjoy more conversation with you.
Hugs,
Rosemary

@ weezielou, I lived with Type II diabetes over 30 years before I was able to get a pancreas transplant. I have been referred to nutritionists more time than I can remember. Through testing and monitoring people like me, changes to treating our diseases have improved. For example, Having a sweet or alcoholic drink occasionally will not kill you if you keep in in moderation. By moderation I mean A small piece of birthday cake and one piece of candy for each holiday. I can tell you that the longer you stay away from it the easier it will become. Secondarily, read the labels on everything. You will be surprised how many things have unnecessary added sugars.
My kidney disease is stage 3, so I am working hard to hold there and not progress to dialysis or needing a transplant. I started a low oxalate diet which has improved my kidney function and gotten me off the kidney transplant list.
I am glad you found this group, hopefully we can all learn some new things together. Blessings.

@2011panic. Admire your self-discipline as concerns your diet. May you have continued success!! With now only one kidney,trying to learn about its care and feeding!! My question is: what is a low oxalate diet?

@trishanna Oxalates are formed in the body and excreted through the kidneys. I have a list of foods and their oxalate levels that helps me make better choices from food available to me. Since I started the list has changed significantly and become much larger. The list I use was provided from the Mayo Clinic in Rochester, MN

@2011panc Thanks for the information - will discuss this with my nephrologist cause I have had kidney stones.