@lookingforanswer Hi. With the others, a couple of comments. First, it would not be unusual to have a series of nerve events giving a lot of damage, especially in the follow-through from juvenile encephalopathy. That is one of these things that can lay dormant for decades, or even progress very slowly as your internal protein-producing organs, such as the liver, age. These protein disorders usually start from a single-cell prion, and grow very slowly in a general pattern for the rest of life.Say a single cell doubles ever few hours before it dies and is deposited someplace, like the brain or the cardiac sensory-motor nerve, it still usually takes decades to build up a damaging deposit. And if, along the way, damage gets done by something else, this can only make the situation worse. Yes, go to Mayo, or wherever, and have them do their workup on you.