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No symptoms- do I have to be treated?

MAC & Bronchiectasis | Last Active: Feb 19, 2018 | Replies (24)

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@tdrell

All....I asked the ID doctor at NJH Re Nitric Oxide therapy for NTM treatment when I saw her a week ago. She brushed it off saying.....no proof of effectiveness.
Another question I was supposed to ask had to do Re cleaning Acapella equipment.
Soak 4 pieces in soapy tap water then rinse with water boiled for ten minutes.
Tdrell

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Replies to "All....I asked the ID doctor at NJH Re Nitric Oxide therapy for NTM treatment when I..."

So lets get the evidence then

@tdrell, interesting about the nitrous oxide statement. I was curious a while back myself, so I looked it up on the NIH website. It stated there that it does work to kill off mac; but that it wasn't cost effective in the delivery , and that they are still working on that.

All.....that was the Aerobika....not Acapella.....
Also....here is a saga full of irony....so I had annual appts at NJH in Denver on Monday January 29, 2018. After review of CAT scan done there in November,and cultures grown there and in Wisconsin, and Pulmonary Function tests from that day, I was told lung function was stable from a year before....that GErD/aspiration of bizarre organisms into my lungs from stomach was my issue not infection....compounded by Vocal Cord Dysfunction....allergic rhinitis...obstructive sleep apnea...and obesity.
That was Monday, on Tuesday a productive cough started,....continued during my hour appt with Speech Pathologist Wednesday. For first time in my 73 years I had no appetite and went to sleep at 7pm and awoke exhausted at 10am.Somehow able to drop off rented car at Denver airport,shlep all my bags ( medical notes, medications,CPAP etc) to gate thanks to wheel chair assistance. Hacked the entire 2 hours of flight....wheel chair from gate ....hubby got bag....into car, called friend ...retired infection control nurse to confirm what I suspected I needed to do.....and did it. Went to Urgent Care 3 minutes from house....my regular Dr on duty......did nose swab....that came back with Influenza A.....put on steroids, Tamiflu and antibiotics since I had a purulent ear infection....so for 10 days, I have been vegging here at home recovering from my annual visit to respiratory hospital...and yes,,,,I did have the high dose flu vaccine in Sept.
I suspect I caught the grunge on plane going to Denver.....a woman sitting a few rows ahead and kitty corner coughed the whole 2 hours. Sadly everyone on the return flight had my germs spewed out on them. I now have learned to use the masks I had in my purse.take care all...tdrell

Is it cost effective for us to keep having repeat CT scan, lab work, long-term repeat visits to the Pulmonologist, Infectious Disease MD?We should see how the people use if for Pulmonary Hypertension.

I think it depends on how far along in disease progression the person is...

@tdrell, Sheesh, girl! You have really been through it! I know te masks can be uncomfortable, but theere is one you can buy at a paint store called P95. It has a filtered breathing gizmo in the front. You can breathe nicely and it does not get sweaty. It blocks out over 95% of particulate matter including bacterias. A pk of two runs about $6.99.