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No symptoms- do I have to be treated?
MAC & Bronchiectasis | Last Active: Feb 19, 2018 | Replies (24)Comment receiving replies
@reneeplus6
My personal take is the get an infectious disease opinion and maybe a third opinion at a Mayo or somewhere.
It's a bit concerning that the ct is worse but having no symptoms is very encouraging.
Also would wait to see if a couple of Mac tests in a row come back positive.
I was positive to mycobacteria abcessus for a year with no treatment and have turned negative the last year. My doctors chose a wait and see approach.
I'm sure others will chime in here.
Take care
Shari
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@reneeplus6 , my doctor at Mayo takes the wait and see approach too. He said that many times the mac goes away on it"s own. He likes to treat with antibiotics, but not the Big 3 cocktIl. He did not use the wait and see approach on me because when I first went to him I was actually infected with pseudomonas. That one doesn't require a lengthy treatment. It was gone in 30 days. Several years after my first visit with this doctor, I did test positive for mac. I was put on monthly antibiotics indefinately. Still, not the Big 3, just one antibiotic for 10 days a month. I have been on this regimen for two years. So gar, it has been working for me. I never cough and seem normal with the exception of shortness of breath and low energy. I fefinitely jave a better quality of life now since attending the Mayo Clinic. I hope that you can find some peace with this disease. Hugs, Terri