I have had it bad for a little over a year. It has now progressed to where I have extreme pain and numbness, unable to walk. I haven't been able to lay down in bed for over a year. A hospital bed only made the nerve pain worse. I've been in a recliner since Jan-Feb of 2017. My chiropractor referred me to an orthopedic surgeon who said he won't touch me and sent me to an orthopedic Dr with the same group for pain management. He just gives me epidurals which don't last long and are just a band-aid on the problem. Last week I saw a different chiropractor, that came highly recommended, with my recent MRI that my PCP had sent me to have. After reviewing the MRI he adamantly refused to treat and said I need to see a neurosurgeon. He reviewed an x-ray that also was taken and explained the growths are pressing on my spinal cord. Justin I am scared to death. I don't want to be a cripple the rest of my life. He gave me a referral to a neurosurgeon. My family says "go to the Mayo Clinic" and I agree. However I have heard it's very hard to get an appointment and I can't wait for months or years. I am scheduled for another epidural Thursday the 15th but that's as far as I've gotten. I thought I would try to see what other patients of the Mayo had to say. Thank yo so much for getting them involved. Patsy

Well, I just called the Mayo Clinic and was told they are scheduling one year out. So much for getting the best. Very sad!!!

@patriciajennye Hi, Patsy. Over the last couple of centuries several members of my family, including me, have experienced tough times with spinal stenosis. Various kinds of arthritic nodules have formed in the spine, putting pressure on the nerves and blood flow in the area. Now we are learning this is a hereditary disease, at least for us. We have some form of Light Chain Amyloidosis which shows up differently in different individuals. Mine is apparently systemic primary hereditary Light Chaim Amy. I have about 220 distinct symptoms and signs, with some more probably showing up in the future, as long as I live. Back in about 1890, a young woman was diagnosed with "arthritis nodules and stems around the spinal column, putting pressure on nerves and bones and blood flow." I have and have had the same stuff, complete with epidurals and every pain killer you can think of. Now it is all over my body, especially my brain, throat, lungs, heart, liver, kidney, skin, spine, etc. I also have 4 of 6 sisters with it, and several nieces and nephews and others with it. Almost everyone over 70 shows, and many in their 20s. You can read my story freely at https://bit.Ly/1w7j4j8 "Amyloidosis" I suggest you find a good hematologist, and check your misfolded protein levels in your blood serum, urine and spit. Also, biopsies of skin and other tissues will be necessary, and have Mayo do the lab work on them. Also, your cardiologist can and should do a 12-lead ECG with a good machine which clearly shows enlargements of your QRS tracings. A sawtooth pattern means it is in your heart, a very dangerous sign. It seems like a lot of work for what could be nothing, but it could let you live an extra 10 or 20 years. In our family most of us die at about the age of 70, when the stuff is just getting going good. You probably do not have it, but if you do, treatment with Patisiran can give you extra years.

I have spinal stenosis, scoliosis, degenerative disc disease, and two herniated discs. I was a self-referral to the Mayo Clinic in Rochester in 2016 but I only had to wait about 6 weeks to be seen. I will need to gave a spinal fusion sooner rather than later. Keep trying at the Mayo Clinic....the time frame for an appointment might decrease!

@patriciajennye. Please know how much I hope you will find an answer that will alleviate your pain!!! My stenosis is of a different nature than yours, so I'm afraid there's nothing I can recommend to you based on my experiences. However, I would encourage you to pursue Mayo Clinic - make a pest of yourself if necessary. Also ask if any of their other locations would be of more benefit to you (I do not know where you live, but Mayo has several locations). And please keep us posted!

@bernese53 Thank you for your kind words. You've heard I'm sure the old phrase "getting old is a bitch"....I can without a doubt agree with that statement!!

Oh, yes. I like to say that my mind and spirit are young but the rest is about 226 years old.