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Patients and caregivers are “Experts by Experience”
Dear members,
Today we're excited to announce that Mayo Clinic and Inspire have launched “Experts by Experience” – monthly articles written by patients and caregivers from around the world.
The kickoff article is Kindness at the Margins for Caregivers by caregiver Renata Louwers.
Everyone has a story to tell. As you know firsthand, sharing experiences helps build hope and connections. “We have long believed that patient and caregiver stories have considerable power to not just improve their own health care experience, but to improve health care overall,” says Farris Timimi, M.D., a Mayo Clinic cardiologist and medical director for the Mayo Clinic Social Media Network, a collaborative learning community and resources for advancing the use of social media in health.
Experts by Experience articles will appear monthly in communities here on Mayo Clinic Connect, Inspire.com, and for professionals on the Mayo Clinic Social Media Network. Read more about Experts by Experience in today's press release.
Please feel free to share the articles with your online and offline networks. If you have feedback on the series, please contact me using this form.
Staying connected,
Colleen
Community Director, Mayo Clinic Connect
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Today we published an article written by your fellow Connect member @kariulrich
- Grieving the Loss of Your Physician – Experts by Experience by our very own https://socialmedia.mayoclinic.org/2018/04/06/grieving-the-loss-of-your-physician-experts-by-experience/
Thank you Kari for sharing your insights here and for Mayo Clinic professionals!
PS: The Experts by Experience blog series is published bi-weekly on Mayo Clinic's Social Media Network here: https://socialmedia.mayoclinic.org/tag/experts-by-experience/
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5 ReactionsBrilliant. Sometimes I learn more from Patient experiences, then I do from professionals who can only give me 5-10 min of their time.
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5 ReactionsThat is such a powerful piece of writing. Taught me a lot about how to approach my own health care with my drs. Gaining the confidence to become your own advocate together with your physician doesn't come naturally. We often need to be taught this by patients who achieve it.
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5 Reactions@kariulrich
What a great article! Thanks for sharing your experience.
Teresa
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1 ReactionGood morning- Over my 20 years fighting lung cancer I have had 4 primary doctors
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2 ReactionsLearning to Trust Again -- @kdubois' Journey with Drug Intolerance in the Experts by Experience series https://socialmedia.mayoclinic.org/2018/05/04/learning-to-trust-again-my-journey-with-drug-intolerance-experts-by-experience/
Kelly was born with the inability to properly metabolize many medications due to mutated genes in my Cytochrome P450 liver enzyme system.
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4 ReactionsThank you again for the opportunity to share my story.
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3 ReactionsLife is indeed a precious gift, and nobody knows that better than organ transplant recipients. Rosemary @rosemarya shares her transplant journey – a story of confronting guilt, overcoming fears, and endless gratitude to the donor, and to the family who gave her permission to enjoy life.
PS: Enjoy your life – Experts by Experience
https://socialmedia.mayoclinic.org/2018/09/07/ps-enjoy-your-life-experts-by-experience/