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Treatments for Lichen sclerosis besides steroids

Autoimmune Diseases | Last Active: Oct 19 5:47am | Replies (173)

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@erikas

@ronjon27 You've been a member of Mayo Clinic Connect since 2017 but this is your 2nd post. I'd like to welcome you back to Connect.

You asked if others see their GYN one a year for follow up. I'm assuming that you are diagnosed with lichen sclerosis, you see your provider once a year, and you are wondering if this is typical. Did I get that right?

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Replies to "@ronjon27 You've been a member of Mayo Clinic Connect since 2017 but this is your 2nd..."

I have an appointment with my GYN every 3 months owing to my lichen sclerosis. I rarely can last until the next 3-month appointment so see her more frequently. She is very busy, but her nurse will always find a spot for me to see her if I call and say I am in great need of seeing her. Of all my medical conditions, this is the worst! I understand there is no cure and thus, no hope of shaking this. I have had it for years. Sometimes the diagnosis is "just" cellulitis (that one landed me in the hospital) or vaginitis or a yeast infection. Ah well, I am still alive and thankful for that. @joybringer1

I was diagnosed with lichen sclerosis five years ago. For the past three years I have been symptom free. I have not had to use clobetasol or any other medicine for the past three years. Yet my GYN is having me to come back every year. I thought since there is no longer any noticeable signs that I should not have to be going back every year. When I questioned the dr about it she said she just wants to make sure it does not come back. I feel every two years should be sufficient.