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Treatments for Lichen sclerosis besides steroids

Autoimmune Diseases | Last Active: Oct 19 5:47am | Replies (173)

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@misssassy

We are all so different. And I can only hope I can give you hope though I have no solutions and no suggestions. I was diagnosed by an experienced gynecologist and treated accordingly for LS. For some unknown reason my LS went away. I had it for about a year and a half. . It was awful. And then it went away. My only treatment was Clobetasol . I knock on wood scared to death it will return because I am claiming to be free of it. But the date on my last Clobetasol prescription was March 2019. So sometime after that it went away. I am 79 and have not been sexually active for many many years if that might be questioned. I have no idea what made the change. The only changes in my lifestyle and pattern during that period of 2017 to 2019 was I lost 35 lbs and was primarily on a salt free diet. Not low salt But as salt free as I could get it ! (Salt triggers my appetite is why I chose this to lose weight. ) In no way whatsoever am I suggesting a low salt or salt free diet made the LS change I am just reporting some of the details of my experience. Because I truly don't know of any thing that might possibly contribute to the LS going away. I just hope this can give you some hope !!! I wish you the best.

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Replies to "We are all so different. And I can only hope I can give you hope though..."

How fortunate you are to have no more lichen sclerosis. I don't think I have ever heard such a good story. I hope you will continue to be free of this dreadful disease. I was diagnosed many years ago (after looking for a gynecologist and finding one on my fourth try) who knew anything about this. I have given up hope for ever recovering from this. I make appointments for three months after each visit. My doctor is very busy, but she always sees me when I call and say something is worse. I never make it to the three months appointment before I have an emergency appointment. We always keep the 3-month appointment on the books. I survive with halobetasol and a compounded cream that numbs my inflamed parts. It does sting when first applied, but then I have some relief for about 1 1/2 hours. @joybringer1