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Treatments for Lichen sclerosis besides steroids
Autoimmune Diseases | Last Active: Jan 27 10:08am | Replies (160)Comment receiving replies
I concur. LS must be treated although it always comes back. It could be worse without treatment. This is one of those hateful diseases of "no cause, no cure." I use halebetasol, but will ask my gynecologist next week about switching to clobetasol. I did a bit of reading and one of the sites said halebetasol lasts longer after applied. I read about foods to avoid if you have lichen sclerosis. It is a long list and I eat many of the foods. I am not ready to change my diet. I eat what we have and mostly what my husband cooks. My gynecologist is the fourth one since feeling this pain many years ago. I trust her and will stay with her. I use a compounded ointment to numb the pain. Right now I am using haebetasol twice a day. Maintenance is twice per week and twice per week of Premarin. Didn't one of your doctors tell you to use the clobetasol after confirmed LS? I have appointments with my gynecologist every 3 months and I never make it to that time before I need to see her again. We always keep that as my back-up- appointment and I will be using that next week. Good luck to all of you who are suffering this dreadful disease. I have never hear of the spots on both sides of your torso. Please ask your doctor what to do! @joybringer1
Replies to "I concur. LS must be treated although it always comes back. It could be worse without..."
Yes, my gynecologist correctly diagnosed LS twenty five years ago. The last steroid creams all caused stinging resulting in sporadic use. I tried several. Big mistake on my part. Initially, LS didnt bother me. It was diagnosed during annual exam/pap smear. Should have persevered. Damage done. I use faithfully clobetasol now.
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We are all so different. And I can only hope I can give you hope though I have no solutions and no suggestions. I was diagnosed by an experienced gynecologist and treated accordingly for LS. For some unknown reason my LS went away. I had it for about a year and a half. . It was awful. And then it went away. My only treatment was Clobetasol . I knock on wood scared to death it will return because I am claiming to be free of it. But the date on my last Clobetasol prescription was March 2019. So sometime after that it went away. I am 79 and have not been sexually active for many many years if that might be questioned. I have no idea what made the change. The only changes in my lifestyle and pattern during that period of 2017 to 2019 was I lost 35 lbs and was primarily on a salt free diet. Not low salt But as salt free as I could get it ! (Salt triggers my appetite is why I chose this to lose weight. ) In no way whatsoever am I suggesting a low salt or salt free diet made the LS change I am just reporting some of the details of my experience. Because I truly don't know of any thing that might possibly contribute to the LS going away. I just hope this can give you some hope !!! I wish you the best.