I am so sorry to hear of your problem. I have it too. Was diagnosed 2 years ago. I did the same thing you did. It was in July and the grandkids were here for outdoor adventures when it hit me. I thought it was a bad UTI so I stopped in that the local drugstore clinic for a test and a quick fix. Wrong. No UTI. Long story short, I saw my gyn. She diagnosed it by saying, "I'm sorry to tell you that you have another autoimmune disease called Lichen Sclerosis." Prescribed the Clobetasol and that has held me. I use a dab when I feel a little warning. I'm glad to hear that Aquaphor can help too. It is very important to take care of yourself in this regard and finding the right doctor who is knowledgeable about LS and other autoimmune diseases. Since this this an AI disease, there is a pretty strong chance you may have other AI diseases to develop. Best wishes.