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Treatments for Lichen sclerosis besides steroids
Autoimmune Diseases | Last Active: Jan 27 10:08am | Replies (160)Comment receiving replies
I was diagnosed with Lichen Sclerosis by biopsy about 15 yrs ago. I have used Clobetasol for several years. I use it twice a week for maintenance. If I have a bad flare I use it daily until things start settling down. I used Flucininoide steroid ointment in the past but it doesn’t work well enough for me. I’m currently having one of the worst flares I’ve ever had. It is affecting my Urethra and causing moderate pain. I thought it was a bladder infection so went to the doctor last week but urine test was negative. I have been mixing Clobetasal with 5% Lidocaine cream and applying it. I will be going to the doctor this week to see if there is anything else I can
Replies to "I was diagnosed with Lichen Sclerosis by biopsy about 15 yrs ago. I have used Clobetasol..."
I am so sorry to hear of your problem. I have it too. Was diagnosed 2 years ago. I did the same thing you did. It was in July and the grandkids were here for outdoor adventures when it hit me. I thought it was a bad UTI so I stopped in that the local drugstore clinic for a test and a quick fix. Wrong. No UTI. Long story short, I saw my gyn. She diagnosed it by saying, "I'm sorry to tell you that you have another autoimmune disease called Lichen Sclerosis." Prescribed the Clobetasol and that has held me. I use a dab when I feel a little warning. I'm glad to hear that Aquaphor can help too. It is very important to take care of yourself in this regard and finding the right doctor who is knowledgeable about LS and other autoimmune diseases. Since this this an AI disease, there is a pretty strong chance you may have other AI diseases to develop. Best wishes.
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Hi. I was diagnosed by biopsy in September. I started a rx of clobetasol CREAM and then immediately experienced searing/ burning discomfort- so much that I could not sleep. My gyn seemed confused by my worsening pain and sent me to a dermatologist. She immediately identified that the Cream formulation was my issue- she prescribed clobetasol OINTMENT and lidocaine ointment. Using the ointments made a difference for me in just 24 hours.
I am not sure if the cream rx was an oversight By my gyn or my body’s reaction. The dermatologist insisted that the ointment formulation was the better rx- and for me that was the case. I am now using the clobetasol ointment 2-3/week and have not needed the lidocaine in a few weeks. Good luck- this is a frustrating medical condition.