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Treatments for Lichen sclerosis besides steroids

Autoimmune Diseases | Last Active: Jan 27 10:08am | Replies (160)

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@honolulukk

How do I find a doctor in my area who has experience treating lichen sclerosus? My OBGYN did a biopsy and diagnosed me with LS about a year ago. She is very nice, but does not know a lot about treatment. My dermatologist does not seem to know much about treating LS, and didn't examine me. He told me that it was bad to use clobetasol and said to switch to Elidel, which caused immediate irritation. I live in Honolulu. Thank you.

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Replies to "How do I find a doctor in my area who has experience treating lichen sclerosus? My..."

@honolulukk I see a gynecologist who sees many patients with lichen sclerosis. I was prescribed clobetasol. There has been improvement. It cannot be left untreated. I had also seen a dermatologist who also deals with women who have l.s. Same advice.

@honolulukk What an uncomfortable, annoying problem you have. You might think about returning to your OBGYN, who you like, and ask about clobetasol. Also see if she will ask others OBGYNs if they have heard of LS and how they might treat it. You must have had to make a lot of changes in your routine, especially with the heat and humidity. Let us know what your doctor says; it could be a big help to others!

I’m wondering if you have found a physician for your lichen sclerosis @honolulukk ? It can be so uncomfortable and irritating! Please don’t let it go untreated too long