Hello, @januaryjane - welcome to Mayo Clinic Connect. I'm sorry your care for this condition thus far has left you feeling confused and stressed. I moved your discussion and combined it with @ret18's discussion similarly titled, "Lichen sclerosis anyone." I did this so you could meet @ret18 @suzeebee227 @misssassy @tropicallady1276 @tamarrillo2 and other members who have discussed lichen sclerosis. Hoping they will have some input for you on the seriousness of the situation from their own experiences and can help you get some answers.

How long have you used the cream the doctor prescribed? Do you have a primary care provider you could also check with on your situation?