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Treatments for Lichen sclerosis besides steroids
Autoimmune Diseases | Last Active: Oct 19 5:47am | Replies (173)Comment receiving replies
Hi, im 33 and just got diagnosed with lichens sclerosis last year. I got inflamed and itchy so I went back on my steroid cream, after a week of not clearing up, I made appointment with my gyno. For some reason she has been off with my care, and I think she is young and spread too thin. She dismissed me, saying she wished she had a magic wand, but she doesnt. Hmm. Thats scary, i left confused. I started treating it with cream for yeast infection. It is helping but may need a pill. I tried to show her a place on my labia that had bled, and also dismissed this. Well the other night it broke open again and bled. It is red and irritated. My doctor has thrown me for a loup with her behavior and im in a pickle of going back or finding someone else. Im too tired for any drama. Im just not sure how serious this is. I will watch it. Im just very mad at the situation, as I am trying to focus on other health issues. Dont know if anyone can relate. Im just so stressed about everything and i want to hibernate in my bed and take a long break.
Replies to "Hi, im 33 and just got diagnosed with lichens sclerosis last year. I got inflamed and..."
@januaryjane I know nothing about this condition, but if my doctor seemed that disinterested, I would definitely find a new doctor.
JK
Hi! I have had Lichen Sclerosis for 15 years or more. My first suggestion is that you find a new doctor. There are prescription medications for the condition and there’s no excuse for your doctor blowing you off like that. I use Clobetasol Propoipinate two - three times a week and it has helped greatly. I used to have areas break open and bleed like you mentioned. Since being on the Clobetasol, I don’t have that happen anymore. With the right treatment it gets better so hang in there. Take Care. 😀
@januaryjane- Good morning and welcome to Mayo Connect. I am a Mentor for Connect, usually in the lung cancer and wellness group, stop smoking and join in with recipes and general gabbing. I'm 72 years old and have had my share of yeast infections. Now I get them occasionally. The only time that I experience any pain is if my urine is too strong from lack of enough water and if I am dry. So I put on Aquaphor. It's a ramped up Vaseline with mineral oil, lanolin, glycerin, etc. that coats the skin. This might help.
I'm horrified that your gynecologist reacted the way she did. I hope that you reported her. I suggest that you seek another one and get a thorough work-up by a gyn who is familiar with symptoms of lichens sclerosis, or will work with you and learn more about this disease. Can you get a recommendation from anyone in your area, or from forums?
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Hello, @januaryjane - welcome to Mayo Clinic Connect. I'm sorry your care for this condition thus far has left you feeling confused and stressed. I moved your discussion and combined it with @ret18's discussion similarly titled, "Lichen sclerosis anyone." I did this so you could meet @ret18 @suzeebee227 @misssassy @tropicallady1276 @tamarrillo2 and other members who have discussed lichen sclerosis. Hoping they will have some input for you on the seriousness of the situation from their own experiences and can help you get some answers.
How long have you used the cream the doctor prescribed? Do you have a primary care provider you could also check with on your situation?