← Return to Camptocormia (bent spine syndrome or BSS): Looking for others

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@hopeful33250

Hi @lioness,
Thanks for pointing out that most members on this site do not have PD, however, I mentioned the PD exercises to this new member with camptocormia because she indicated that she was first diagnosed with PD. Often PD and camptocormia go together. Here is an article from the NIH website that discusses PD and camptocormia,

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6174367/

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Replies to "Hi @lioness, Thanks for pointing out that most members on this site do not have PD,..."

Thank you for posting the nih website. The information was helpful. I have PD and "something else". In 2018 recovering from extensive back surgery, I had a pulling down sensation, pulling my chest forward and then becoming short of breath. I assumed it was from the surgery and that PT would take care of it. Two years later and it is getting worse. My PD doctor has come up with 3 different diagnostic names: abdominal dystonia, camptocormia, and diaphragmatic myoclonus. Two weeks ago he injected Botox into rectus abdominus muscles. I have had no improvements nor side effects. I think the reason I don't have back pain is because I have such a hard time breathing that I sit down quickly before the back gets involved. I have felt a pulling sensation in my lower back but the breathing difficulty trumps the back tightness. If Botox doesn't help I assume I will be confined to a wheelchair in the near future.