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DiscussionCamptocormia (bent spine syndrome or BSS): Looking for others
Spine Health | Last Active: Aug 28 6:41am | Replies (154)Comment receiving replies
Replies to "Hello @porthole, Welcome to Mayo Clinic Connect. Thank you for sharing this information. I found the..."
Thank you John for posting that article, I am a woman who started getting symptoms about 13 years ago in my early 30s, while my back wasn't the worst symptom of what I now know to be a Mitochondrial Myopathy and M.A.D.D., where when I was extremely ill manifested by my having to hold my head up, so it was a very interesting article as my diagnosis are both rare diseases. My M.A.D.D. is affecting my short, medium and long chain fatty acids (it's normally just the one so to have all three must mean I am very special - my slightly sarcastic way of dealing with this, I am in Ireland, so rare is even rarer with a population that doesn't hit 5 million), so thank you for that insightful article.