← Return to Camptocormia (bent spine syndrome or BSS): Looking for others

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@sadnancy

Thank you for sharing your story. I'll be seeing my movement disorder doc on Tuesday. I don't have back issues. The muscle spasms occur in the front. I wonder if there are subgroups of Camptocormia? Or maybe it's like PD - every pt experiences it differently.

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Replies to "Thank you for sharing your story. I'll be seeing my movement disorder doc on Tuesday. I..."

One thing I would like to point out to those searching for a diagnosis for their bent over posture. When viewing the MRI/X-RAY from a back view, while facing forward, the rear view of the vertebrae should show two black dots at the point where the vertebrae merges with and forms the spine. The black dots are muscles, two per vertebrae. With Camptocormia these small muscles atrophy and are individually replaced with white dots, which is fat/adipose tissue. The cause of this unknown, even among those who study and are familiar with Camptocormia. No known pharmacological response. Best assistance is through walks, throughout the day, which prevents atrophy of other major muscle groups, and gets us out, thus my search for the best walker, and brace, when needed.