← Return to Camptocormia (bent spine syndrome or BSS): Looking for others

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@ethanmcconkey

Hi @sadnancy and welcome to Connect. You may have noticed that I moved your post to this existing discussion on camptocormia so that you can connect with other Connect members like @wiserranter and @lotsofpain as they have experience with camptocormia and may be able to share their experience with you. Simply click VIEW & REPLY in your email notification to get to your post.

That is great that you've had no back pain since your last back surgery. What other symptoms are you or were you experiencing?

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Replies to "Hi @sadnancy and welcome to Connect. You may have noticed that I moved your post to..."

@ethanmcconkey Thank you for placing me in the correct category. Before the back surgery I had sciatica and numbness in my left leg. I also had butt pain. I was pretty much bedridden. After the first surgery my left foot didn't land where my brain was expecting it to. The surgeon said it wasn't from surgery, the cause is higher up the spine. As months went by pain got worse. I went to Dr. #2 and he did a great job. The other day I met up with someone who also needed a second surgery. His #1 doc was my #2 doc. His #2 doc was my #1 doc. Interesting.My current PD symptoms include apathy, inertia, akinesia, tremors, dry eyes, rigid and/or curling toes/fingers, impaired balance, slow speech, handwriting changes,jerky gait, drooling, clumsy, muscle spasms, difficulty getting in and out of vehicles or getting up from a chair. BBS symptoms:I can stand up with no aids for about 3 minutes. If I lean on something like the kitchen counter or a grocery cart, I can stand longer. After 3 minutes of unassisted standing the muscles above my waist and the diaphragm go into spasms pulling my upper body forward, making it difficult to breathe. I've been complaining about this since January. The surgeon says it isn't from the surgery. PT couldn't help me. Muscle relaxants haven't helped, neither has alcohol (I was desperate one evening!) If I'm at home not using the walker, eventually I become stooped over as if I'm bowing. Tylenol with codeine puts me to sleep. When I'm asleep nothing hurts. Addictive drugs are not a satisfactory treatment. It's a shame that my legs are strong for walking but this syndrome prevents me from doing that.