← Return to Camptocormia (bent spine syndrome or BSS): Looking for others

Discussion
Comment receiving replies
@rjmcb

I am currently 79 years old, white, male and about 5' 10", 170 lbs. I was a daily, rapid walker (2-3 miles in 50-55 minutes) when suddenly toward the end of the walk I needed to sit down as my back suddenly felt tired/worn out, but no pain. I was 63 at the time. Since then I've tried: Chiropractor, physical therapy, facet blocks, epidurals, lamanectomy, neurostimulator implant, acupuncture, heat, cold, rubs, think I covered about all. I have met with neurologist, neurosurgeon, internist, chiropractor, physical therapist, psychologist. I visited Mayo Clinic, Jackson, FL. I have had X-rays, MRIs, Cat scans, blood work, urinalysis. The one common "conclusion" shared by all, including Mayo, was that I had apparent arthritis, BUT NOTHING UNUSUAL FOR MY AGE. It wasn't until December of 2017, that I visited a neurologist (the third one) in Savannah, GA, and he asked for my symptoms, which I described as lower back fatigue (like carrying a lightly loaded food tray with outstretched arms). He diagnosed me within 1 1/2 minutes and said: "You have Camptocormia. I haven't read anything about it for 15 years, but that's what you have". He printed out a Google information sheet for me and I felt like I was reading a diary entry. Upon re-reviewing my MRI it is easy to see the atrophy of the small muscles at the bases of individual vertabrae. I have never been diagnosed with Parkinson's, which almost all who suffer from also have Camptocormia. I have gotten a very good walker, and with my back brace, can walk 2 miles. Without the brace, about a mile. With neither I can only walk about 100 yards and then need to sit. When I lie down or sit, everything is as normal as it had been my entire life. The brace was supplied by Hanger Clinic Prosthetics, in Bluffton, SC, but I believe they are a national firm. Sorry for the length but I do hope it helps.

Jump to this post


Replies to "I am currently 79 years old, white, male and about 5' 10", 170 lbs. I was..."

Thank you for sharing your experience with "it". I feel that if I had a brace to hold me erect, I could walk easily. My legs work fine. I'm going to check Hanger and see what they can do for me. I'm a 72yo female living in Lexington, SC.

I have this condition and have found the only way I can get about is with a pair of trekking poles, this really impacts on the arm muscles most notably the triceps; I also use a low - frequency vibration plate and other isometric and stretching exercises. There has been an improvement this year, so I am keeping up with more of the same. I had never heard of
Camptocormia until about 2 years ago, but was determined to try anything. Now aged 79 and the same weight and height approximately 5' 9'' and 168 lbs