← Return to Camptocormia (bent spine syndrome or BSS): Looking for others

Discussion

Camptocormia (bent spine syndrome or BSS): Looking for others

Spine Health | Last Active: 2 days ago | Replies (146)
Comment receiving replies
@hopeful33250

@wiserranter

Are you near a Mayo facility (they have 3 locations in Minnesota, Florida and Arizona)? This might be a good place to treat these disorders.

Teresa

Jump to this post

Replies to "@wiserranter Are you near a Mayo facility (they have 3 locations in Minnesota, Florida and Arizona)?..."
laurie386 | @laurie386 | May 20 12:17pm

Hi, Teresa. I am barging in on your response to wiserranter regarding the Mayo Clinic. As of Feb 2022, I was officially diagnosed with Camptocormia/Bent Spine Syndrome. My next to last doctor (neuro muscular physician) said the only cause she could see for it was genetics as there are some outlier markers in the DNA test she took. You told wiserranter that the Clinic might have treatments for Camptocormia...or were you referring to the CP that wise has, also. Would you happen to know who would be a direct contact at Mayo that I might be able to talk with regarding my particular case of Bent Spine Syndrome? Thank you for your volunteer work and thank you for any info. laurie386

VIEW AND REPLY