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DiscussionTwitching feet, numbness and headache
Neuropathy | Last Active: Feb 14, 2018 | Replies (20)Comment receiving replies
Replies to "Lisa (@techi) here is some more information I found on the Pernicious Anaemia Society's website that..."
Hoping they find out what’s wrong with your sister and she is able to get on the road to recovery.
Genetics do play a part. I found out recently that my cousin who is about the same age as I am also has Polymyalgia Rheumatica (PMR) and small fiber peripheral neuropathy just like I have.
John
@johnbishop thank you John I am sending a message to the neurologist at the Mayo Clinic that behavioral therapy isn't where I need to go and I don't have conversion disorder and also when she said I been a neurologist for along time and she knows about neurology and what my neurologist said is true and I have to deal with it if all the test comes back normal she needs to read the Mayo Clinic autoimmune encephalitis alliance and the book Brain on fire she will know the symptoms of autoimmune encephalitis disease. And I am not mental maybe she will learn something she was wrong. You said we have to be our own advocate and you are correct but I guess if I didn't go through it they wouldn't know how to test her. I am praying for you. You are a great mentor who helps people all the time
@johnbishop right now I am in the hospital with my sister who is having memory issues like I had isn't that strange but they said it's not dementia it might be encephalitis like I had or other encephalitis that can't figure out. And I know that's a hepatic thing. So hopefully it's not the same.