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Twitching feet, numbness and headache
Neuropathy | Last Active: Feb 14, 2018 | Replies (20)Comment receiving replies
Hi Lisa (@techi) -- this is a dumb question but do you normally sleep on your side? I ask because I do and sometimes will wake up in the night and depending on how I my arm was positioned under my pillow/head my left arm will get numb and tingly but it will go away in 5 or 10 minutes once I change positions or get up and walk a bit. I have had leg cramps once in awhile but it's almost always when I didn't drink enough water during the day or evening.
John
Replies to "Hi Lisa (@techi) -- this is a dumb question but do you normally sleep on your..."
Lisa (@techi), thank you for the update. I had not heard of Limbic Encephalitis. Did the doctors give you any reasons they thought you might have this? I was able to find the following information:
Neurology Today -- Limbic Encephalitis is Increasingly not Paraneoplastic:
-- https://journals.lww.com/neurotodayonline/Fulltext/2003/12000/Limbic_Encephalitis_Is_Increasingly_Not.3.aspx
Mayo Clinic - Clinical Updates -- New approach to autoimmune epilepsy:
-- https://www.mayoclinic.org/medical-professionals/clinical-updates/neurosciences/new-approach-to-autoimmune-epilepsy
There is an old discussion on Connect on Limbic Encephalitis that doesn't have many posts. The last post was in 2013.
-- https://connect.mayoclinic.org/discussion/limbic-encephalitis/
I am tagging a few members that posted to see if they are still active to see if they have any information they can share. @mlhenderson, @mjenkins00, @lo do you have information on Limbic Encephalitis that you can share with Lisa (@techi)?
Lisa, can you give us an update after you meet with your rheumatologist at home?
John
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John I sleep on my right side and sometimes I have cramps in my arms but I don't know if it's an autoimmune disease or what. I just got my medical records from the Mayo Clinic and it was a little confusing to me. The doctors were saying I had autoimmune encephalopathy but they can't see that it's active but I have a strong positive ana and a positive rnp but they are not for sure what autoimmune disease then the hepatologist said I have symptoms of autoimmune encephalopathy systems but they are not sure if the symptoms are from my portal veins so I am still a mystery but only God knows but for sure they said I was misdiagnosed so I will be seeing a rheumontologist at home..oh and also they said I might have limic encephalitis so you just have to pray.