Stem Cell Therapy?

Posted by joan912 @joan912, Jan 26, 2018

Has anyone looked into receiving stem cell therapy for bronchiectasis? I Googled around and saw that there is a Lung Institute in Scottsdale, AZ (among other places), that offers this therapy. I am a bit skeptical but maybe it's legitimate.

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

@windwalker

@joan912 , Hi Joan. I asked my doctor at the Mayo Clinic about stem cell therapy. He said to beware of those clinics. There is absolutely no scientific proof that it works. One thing that is working concerning stem cell therapy is in the field of organ transplant. For example, they are taking donated lungs and cleaning them and injecting them with your own t-cells. These t-cells then multiply creating tissue that is your own. This process makes it less likely that the body will reject the new organ. This process; they are making great strides in.

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What great info. How long a wait would it be to try to get a doctor at the Mayo Clinic?

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@colleenyoung

Hi Joan and Terri,
It can be really difficult to tell which stem cell therapies and regenerative medicine practices are effective and which institutions are offering evidence-based proven therapies. In fact, recently the Food and Drug Administration (FDA) released a stern warning against unproven stem cell therapies. The FDA issued these two press statements: https://www.fda.gov/newsevents/newsroom/pressannouncements/ucm573427.htm and https://www.fda.gov/newsevents/newsroom/pressannouncements/ucm573431.htm.

To help people learn more about the proven therapies and the promise of developing therapies, Mayo Clinic offers a free telephone consult service. When you call the consult service, they will tell you about the availability of approved stem cell therapy at Mayo Clinic and elsewhere, and for what conditions. They can also tell you about research studies that are actively recruiting participants. Furthermore, you can add your name to a database to be notified when additional studies and information become available. You can learn more about the Consult Service here http://www.mayo.edu/research/centers-programs/center-regenerative-medicine/patient-care/clinical-services/regenerative-medicine-consult-service.
Or call 1-844-276-2003 to speak with one of our experts.

I'm tagging Charlene @charlillie, Patient Navigator from the Regenerative Medicine department to see if she has anything to add.

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I called Charlene and already got appointment for Wednesday. Thank you so much, Jane

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I saw an ad for stem cell therapy for COPD and other lung diseases featuring picture of attractive female doc in white coat with fair amount of cleavage showing. That pic was enough to discredit their whole procedure.

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@goddard

I saw an ad for stem cell therapy for COPD and other lung diseases featuring picture of attractive female doc in white coat with fair amount of cleavage showing. That pic was enough to discredit their whole procedure.

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@clpc That ad doesn't paint a very professional picture.

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