@ethanmcconkey thank you for connecting me on this chain. We recently realized that my symptoms seem to coincide with the beginning of my menstrual cycle (it has been happening at least once a month for six months, progressively getting worse, most dominant on the right side and I also get a rash on my elbows- not sure if this is related). Before the swelling starts, I feel a painful burning of my skin and it becomes extremely red/purple. It can appear as a butterfly rash, but lupus was ruled out via testing. I went to a rheumatologist for extensive testing. Most recently my allergist immunologist suggested that I be tested for something rare called autoimmune progesterone dermatitis in which the body has an autoimmune response to the body’s own progesterone. If this is truly what I have it’s treatable, but the bad news is that I am a month from my wedding and if I have this I will have a major flare up right before which would cause discomfort and potentially swollen shut eyes. My immunologist wants me tested for Autoimmune Progesterone Dermatitis which apparently is a straightforward test in which I’d have a progesterone skin prick test, but so far we can’t find anyone who is familiar with the condition and will do the test for me. I’m feeling desperate because I’m experiencing symptoms right now and am in a window of a couple of days where if it is this could start a treatment plan which could help control my flare up at my wedding.