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Facial Swelling - no diagnosis
Autoimmune Diseases | Last Active: Apr 20, 2023 | Replies (158)Comment receiving replies
My face keeps swelling up and I don’t know why. I have allergies and have been through testing- tree pollen, cherries, but it’s a distinct different feeling than this unexplained swelling and antihistimines don’t help. This swelling can last longer than a week. Prior to it my lymph nodes typically swell, but it normally takes a day before I show signs in my face. I’ve also occasionally run a low grade fever prior to it as well. I do not have any itch, I just feel tired and like there’s pressure on my face. I’ve been through an exact examination with my doctor of everything I come into contact with (body wash, shampoo, facial wash, hand soap, makeup, detergent, food, pets- I don’t have any or any I’ve been around and we can’t find any trigger). I am worried that something more serious could be going on and also for superficial reasons am worried I could be like this when I get married in August. I have not been able to get any answers from primary, allergist, or dermatologist. They say it has to be something random I’m coming into contact with. Other health history for consideration- I’ 31 and was tested for cystic fibrosis a few years back due to unexplained wheezing, modules in my lungs and reoccurrence of pleurisy, bronchitis, pneumonia, sinus infections and stomach problems. I had an intermediate sweat test, given creon for pancreatic insufficiency, but they did not identify disease causing mutations through genetic testing. I also have a lymph node in my right parotid which we’re monitoring. I woke up this morning fully swollen again and I’m just not sure what to so here I am on this board seeking suggestions. Thank you for your time and consideration.
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@hopingforanswer Hi. First, let me welcome you to Connect. I have not heard of your problem so I have nothing helpful to contribute, but I hope someone out there may have had similar experiences. I know too well that some symptoms can be related to something totally different that you would never imagine. For instance, prior to being diagnosed with non-alcoholic cirrhosis my hands were shaking badly. The doctor said it was essential tremor, but it was not, it was from the cirrhosis. Not even the doctors connected that despite it being a typical cirrhosis symptom.
I don't see where are from, but if you are relying on local doctors, I suggest you make the effort to go to a major medical center, preferably a teaching hospital. They see so much more, so they know more. I live in southern NH and my local doctors were mystified by my symptoms, it took a very long time for a diagnosis. I now know if I have anything mysterious again I will head straight to Boston. At this point I go there for most of my specialty care.
I know how self-conscious you must be about this, you want to look the way you look without the swelling, but I do want to tell you that for someone who does not know you otherwise you are still a very attractive young woman. I would not look at you and think that your face was swollen.
I sincerely hope you are able to find the cause of your swelling and get it remedied. Please let us know if you do find anything out.
By the way, my under eye area tends to be very puffy looking and I have come to realize that if I can make myself sleep on my back it is much less so. I have no idea, but perhaps the way you are sleeping could exacerbate it?
Again, please do get back to us. We on Connect really do care when we hear stories such as yours.
JK