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Facial Swelling - no diagnosis
Autoimmune Diseases | Last Active: Apr 20, 2023 | Replies (158)Comment receiving replies
Hi, @lily2013 -- just wanted to suggest you may want to call Mayo Clinic to talk to them about your scheduled appointments and your possible interest in seeing a different department, if that is something you wanted to pursue. I'd also really encourage you to talk to your doctor about the potential risks of stopping abruptly vs. weaning off your omeprazole.
Your thoughts?
Replies to "Hi, @lily2013 -- just wanted to suggest you may want to call Mayo Clinic to talk..."
Will call them to see if a different department will be a better fit for me. I have been coincidentally weaning off of Omeprazole since the beginning of January, but probably a good idea to check with my Gastro doc also... Thanks!
Definitely do not want to be pushed from department to department, that has been my life for the past 2 years. Been to Hematology also had a bone marrow biopsy thankfully clean. He thinks I have an autoimmune... 3 Rheumatologists say negative to that. Thanks for the names you provided it's always helpful to have that information.
At the university I go to, for RA and now my back, blood work is done about a week before my appt. I also see oncologist . For study of blood work.
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@lily2013 Hi, Lily and Lisa; I agree thoroughly with Lisa about her note. I believe the department you need to see in most clinics is hematology, but Mayo-MN has a slightly different mix than many other clinics. Just don't let them push you around to a bunch of different folks until they first do the lab work, protein, urine, sFLC, etc. Martha Grogan and Angela Dispenzieri and Morey Gertz and Kumar know what they are doing.