← Return to Loss and Grief: How are you doing?

Discussion

Loss and Grief: How are you doing?

Loss & Grief | Last Active: Apr 7 12:18pm | Replies (932)

Comment receiving replies
@reibur1951

Just to touch base think hanging in.. on by thread... have survived the "Polar Vortex" heat only by wood and its been a _ to keep going and burning was down to 28 have got it up to 52

It was 52 when when got home at 8 p.m. today - but on chilly side when arrived home from Indy was fine at 4 a.m. and iffy at 6 a.m. but i said _ and went back to bed and was completely out at 8 a.m. nothing to start it with and no time to mess with it - - wood has been frozen, wet etc

the hot/cold water in kitchen froze for almost 2 days - the cold had earlier in week then un-thawed and by Thursday both froze but that's normal in very cold weather - had both hot/cold in bathroom so was not without The washer that's in the
furnace room will not run now was running the day the "Polar Vortex" struck lucky the pressure tank did not freeze... the joys of country living....

Friend back on Dr. visit Jan 7th before 6 week ct-scan (Jan 24th) told dr that the lymph node was hurting and was somewhat swollen the ct showed nothing we missed the Jan 28 dr/immunology I started out but got only mile from home turned around - road was snow packed - could not see but very little of the yellow line occasionally and it was drifting across the road from west to east on North/South road... was rescheduled for Feb 1 but water wast still frozen and was single digit temps with negative wind chill so cancelled out - as have a dachshund & a newly acquired Siamese kitten and house temp was in the mid to low 40's with the wood stove (only heat) being a PIA so cancelled out and weather was to be iffy also

Have set my alarm in the smartphone for 2 hour interval's the rooster "crows" and I get up to check the wood furnace at least I am able to get some sleep in between wake up calls....

His sister and brother-in-law has not even called to see how he is doing or check on us during this cold snap - at least if there is a question of maintenance of the van the brother-in-law does come if called - but I am not one to call and ask (beg) for help - I feel that they should be at least a little bit concerned -

Got the mother's funeral paid for and the crematory house monument from them, Paul and his brother, now just for spring to arrive so foundation can be poured... I got the sister a glass heart for her dad remembrance with cremains, she said no for the half sister & sister but I went a head and got glass flames I thought it was only right - the 2 grand daughters getting acrylic necklaces wood/resin/cremains for the grandfather and wild flowers /resin/cremains for the grandmother of her cremains and the 2 daughters a glass rose/gold paperweight - the step-daughter nothing as she did not even bother to come to the family viewing for Mariea... I have recovered from the 8 day 24/7 vigil and getting back intot he swing or so i thought till the "Polar Vortex" struck... I shall overcome....

We made it today - CT scan showed no major changes - but he was still complaining of the lymph node and its more swollen - not sure why it did not show on the CT unless not high enough was able to have the immunology - after checking all angles with the clinical study they were able to have immunology and also was able to schedule a neck ct- and was able to get it done today after immunology across town at I U Methodist was half hour late but they took him anyway immunology you get there at your appointed time and wait 1-2 hours for the mediation to arrive we took out of I U Med/Simon Cancer at the appointed time of the CT appointment across town.. left Indy at rush hour 5 p.m and it was misting rain and foggy...

So not sure what's going on and what will happen I know will be some big changes before next fall/winter... Said 2019 had to eb a better year beginning to wonder.... God will provide and take care... Nothing is impossible through God as impossible is "I'm Possible"

Jump to this post


Replies to "Just to touch base think hanging in.. on by thread... have survived the "Polar Vortex" heat..."

Your struggle with the cold weather sounds so difficult, @reibur1951 Thank you for checking in. I hope that your friend's son continues to do well with his treatment and that your housing situation gets resolved.

He was scheduled to see ENT Dr. today - had a Fiberoptic laryngoscopy (nasolaryngoscopy) it showed no complications /tumors on the inside of the throat & neck area. The swelling/ growth is a part of the lung cancer being treated this lymph node had shrunk but started to show symptoms again so its a step backwards - was taken off the the clinical study he was on BUT he got put into another - there will be chemo & Immunology together as before but only i chemo drug - Docetaxel (Taxotere) and Pemrolizumab which he has been getting 1st in combo with 2 chemo drugs and then since April alone - all other areas are stabilized or its just the Supraclavicular lymph node acting up for now The neck ct showed nothing new - have not seen the report as yet Blood test were done to get the stud under way - will have to go back for a biopsy of the lymph node which as asked but do not have to have really but suggested trying to stay positive and hope he does as well as he did on the other chemo - no real side effects except losing a little hair and some neuropathy in the feet...

Bracing for a cold night it went from the high 40's low 50's to 32 and to be lower... It rains most of the day. Time will tell... God will be with us and guide us... Nothing has been easy but so far have survived it a.....

Right now my mind is going around in circles.. while waiting for other things to come though hoping they don't go astray... just wishing for warmer weather so i can get things done in between trips to Indy... The syaing the "Best laid plans of mice and men...."