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Loss and Grief: How are you doing?

Loss & Grief | Last Active: Apr 7 12:18pm | Replies (932)

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@reibur1951

He has done amazingly well he is in a clinical study - from Dec - Apr it was a 12 week thing of going down every week - and his dad went with us... sure mess that 🙁 ... It was a 4-3 week cycle Week 1 was Carbiolatin/Abraxane/Pembrolizumab; week 2 &3 was abraxane only amazingly he had no nausea, vomiting or diarrhea - some hair loss (its all grown back in now and thicker it seems) he had some neuropathy, to the feet up to about the heels low ankles and seems to be coming out of that more and more seemed to bother him - he is on the Pembrolizumab (immunology) right now and its every 3 weeks I think up to 2 years not sure... He done the genetic bio-maker thing at the end of the 12 week cycle so that if anything develops or better treatment options comes up he is on the "band wagon" and ready to go. Like said the last CT 6 weeks ago showed the lymph node had somewhat increased in size but not to where it was; the other lymph nodes involved had remained stable; the main tumor in lung had shrunk from the treatment and had not showed any change thus far only concern seems that the area behind the tumor had collapsed so we will see what this CT-scan brings on Thursday... his immunology is next Wednesday.. I need to find an undivided amount of time to sit down and put all reports in a line and read them and compare them. From the horror stories i have heard of others on chemo he done amazingly well he never got a cold, flue etc. during the treatment and his immune level had only dropped twice during that time where the treatment had to be delayed for a week. This was the only option open since surgery and radiation were out from the beginning Like said its termed Stage IVB squamous cell carcinoma of the upper right lung with several lump nodes involved the 2 main is a right supraclavicular and the the left axillary (arm pit) It all in Gods hands He complains very little of anything and denies having any pain or breathing problems he rides his bike to a local country store every late afternoon early evening just about every day in all types of weather which is about 12 miles - out of curiosity I will have to clock it one day to see just how far....

Of the houses I prefer the wind generated one it came on market 2nd.; its the nearest to were I am at the brick one was the first and its okay (its hte furthest away) and the 3rd it is cheaper and in the middle and will suffice and at least its has an acre of buffer but I am sure its in the annexed portion of the town for development into housing/retail I will have to go look at a zoning map to see just what the developer done to sub-divide it off of the parcels he bought but for now it "country"....

I am hanging in and bouncing with what life throws at me knowing God does not give us anymore than we can handle and tolerate at any given time.

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Replies to "He has done amazingly well he is in a clinical study - from Dec - Apr..."

@reibur1951
It really is amazing how many things you have on your plate. You are managing them quite well.

I wonder, are you taking some time for self-care?