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What causes the bacteria to grow in some people and not other?
MAC & Bronchiectasis | Last Active: Feb 27, 2018 | Replies (74)Comment receiving replies
@1478, Hi there. Those are good questions. I have been on this site since 2016, and since I became a mentor, I have documented many things. One thing that stands out more than the others is that people working in the medical field or work in the public school system tend to get mac. About 85% of the women on this site infected with mac were nurses for many years as well as school teachers. There are two common denominators here: one is exposure to many people and their germs & illness, the other is the use of commercial grade cleansers that may be creating super-bugs in theses institutions.
Replies to "@1478, Hi there. Those are good questions. I have been on this site since 2016, and..."
@1478, Cheryl, your mother is blessed to have you advocating for her. It really is hard for older people, (and some younger folks) especially if they are not comfortable using computers and Google, or just feel too sick to get online. Like you said, it is good for you to be prepared in the event that you are predisposed to catching it. If you have not already, you can read how to 'Prevent Reinfection' on this site. These tips can help keep you safe as well. @colleenyoung , can you please send Cheryl the link about reinfection?
Thanks for the tag @windwalker
Cheryl, here are discussion in the group about re-infection and prevention:
- Possible causes of MAC/MAI Re-Infections https://connect.mayoclinic.org/discussion/possible-causes-of-macmai-re-infections
- How To Prevent Re-Infection of MAC/MAI https://connect.mayoclinic.org/discussion/how-to-prevent-re-infection-of-macmai/
@1478, Cheryl, did you get a chance to read the links that Colleen posted for you?
Thank you so much!! All this knowledge brings wisdom.
I really appreciated the post about reinvention. Thank you so much!
I retried the Toby in a new nebulizer and actually got to 15 treatment which was so much better than before( 4 treatments). But I had to stop as I had trouble breathing. Next they will try me on Amikacin. It takes about 2 weeks or so to order it. I read somewhere that one person could only tolerate it every other day.
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You hit the nail on the head!! I'm thankful for your insight and experience since 2016. I have learned so much and have been able to pass it to my mom. She is doing well, but has a hard time reading and gathering information, so I'm trying to help out. I'm also trying to understand because I have the same precursors to getting this bacteria. It is great to see so many supporting each other here. God Bless you.