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What causes the bacteria to grow in some people and not other?
MAC & Bronchiectasis | Last Active: Feb 27, 2018 | Replies (74)Comment receiving replies
Hi everyone. I also have been told I have pulmanary MAC . I found out back in March of 2017 that I have this. I had been in the hospital 2 time with pneumonia both times with in a year of each other. When I was told about MAC I was also told for mor information, to read up on Lady Windermier as well.
I smoked for over 25 years but quit 2 years ago. I have been on the 3 medications for 8 months now with lots of side effects. I was just taken off the ethembuthol last month due to serious breathing problems. I do not have acid reflux and never have. I was raised in Cincinnati, Ohio. I am of very small frame weighing only 97lbs now. I use to weigh about 115 before I caught the 1st bout of pneumoniaa couple of years ago. I was 54 when I found out I had this and I never worked in the medical field.
I hope also you can find a connection. Best of luck to everyone who is fighting this terriable thing. HUGS
Replies to "Hi everyone. I also have been told I have pulmanary MAC . I found out back..."
I have not been tested for acid reflux. I do not have any indestion or burning to even consider have this test. Should I ask my ID Dr. about testing for this? i am new to the group and I am just now learning all the diffrent approches the Dr's are taking in treating MAC. I also forgot to tell you that I have been in central Florida living for the past 35 years. Any and all advice will be greatly apprciated
Hi Carla, my name is Cheryl. From what I understand of this MAC/MAI/NTM is "prevention". My mother was never diagnosed with acid reflux, nor has any acid issues with it. It is better to take precautions to prevent any further damage that may be going on. In MY humble opinion, it would be best to ask your doctor to check these things out at your next appt.
@carla1196, There is what they call 'silent acid reflux' because it has no symptoms. It is possible that you are inhaling stomach acid when you sleep at night. That, doctors believe is the cause of bronchiectasis and/or mac infection. I personally do not think testing for it is nessessary, you could try taking the precautions as if you knew you had it. The biggie is not eating or drinking anything three hours before bedtime. Especially alcohol, and only small sips of water. Avoid or limit highly acidic foods like tomatoe sauce, lemonade, alcohol, grapefruit, etc. so that the esophagus can heal over. You can take a prilosec 30 mins prior to eating to lower the acid level in your stomach. Can raise the headboard of your bed higher so that gravity keeps your stomach acid in the stomach. I sleep on two pillows to raise my head although they say that is not good enough. But, I breath better with a raised head. You can Google Silent Acid Reflux to learn more about it.
@carla1196 Congrats on quitting Carla! Ever have cravings? Have you seen any improvements since you quit?
@ginak That's an impressive quit as well!
Mark
Community Manager
https://excommunity.becomeanex.org
I was not hard for me to quit once the Dr said if you do not quit smoking I guarantee you will end up with lung cancer due to the MAC infection. I quit that day and never looked back! Guess to hear the words you are going to get cancer for sure if you don’t quit was what I need to hear. I wish it could be that easy for everyone to quit.
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@carla1196, Hello Carla, were you actually tested for acid reflux and found to be negative?