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@sharonestabrook

I was diagnosed 9 months ago. I am not taking meds. I am 69, white, a retired RN, 5'2", weigh 120 lbs. I play pickleball and do zumba, so I do a lot of aerobics. I have gerd. I was a pack a day smoker for 20 years and quite when I was 36 years old.
University of Nebraska is doing a genetic study of patients with MAC, according to my pulmonologist.
I love reading the posts from everyone! I wish we could have a giant group hug!

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Replies to "I was diagnosed 9 months ago. I am not taking meds. I am 69, white, a..."

Good Moring Sharon, my name is actually Cheryl and I appreciate this information soo much! I am glad to hear there is so much information and that people are starting to be aware of this thing called MAC. Your past sounds like my mothers. Very health life style but did smoke for 20 and quit in 1982. Being an RN, from the 1960's, she had multiple TB test of course. She has stated that there were times that her tests would come out positive and she would have to go a second time, but that always came out negative. We know this TB does sit dormant for years. My mother is diagnosed with the "Lady Windemere Syndrome". I don't know if there is a connection with that, because my mother who is now 75 years old has NEVER been diagnosed with any autoimmune disease, nor has taken any medication in her life. She is small in stature; 5 feet barely, thin framed, which fits that diagnosis. I have the same background, physical build, smokes years ago and just turned 50. I do NOT want this. Thank you, I know we will find the better ways to treat this!!

I too have been told I am of the Lady Windemere type. But I am not buying that. I feel the root cause is silent aspiration due to the acid reflux at night. The moist lung environment is a breading ground for the MAC. Sleeping with my head elevated, avoiding late night eating and drinking I believe will help with that. I live in Omaha, NE.