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Bronchiectasis: Understanding symptoms

MAC & Bronchiectasis | Last Active: Feb 24, 2021 | Replies (28)

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@tshubby

Hello again. Many, many thanks for all the responses to my post. The insights shared were very valuable and greatly appreciated. I can't reiterate enough how comforting it has been to find this forum and the caring people who share their knowledge and experiences.

A quick update on our visit to the pulmonologist. He took a look at the recent CT scans & x-rays and compared them to CT scans from 1 and 3 years ago and it appears that T's bronchietctasis may have worsened some but that it will be hard to be sure until her current case of pneumonia is cleared, thus confirming that the most recent CT scan report (with alarming references to lung cancer) was not accurate. It was written by a radiologist who is unaware of T's history and her bronchiectasis. We were advised by our Dr. to only have tests done and evaluated (if possible) by those who are knowledgeable about her condition in particular and bronchiectasis specifically. So on the one hand we were relieved, but on the other we know that we still have a serious disease to deal with.

We did a sputum test and we're scheduled for another CT and lung function test in 8 weeks. We were given a new 14 day course of antibiotics to target the pneumonia and some great advice to take it before bed to hopefully sleep through the stomach upset that the last courses had caused. She'll also be taking extra strength mucinex to help get the mucus out. We feel much better about our level of understanding of all this and are hopeful that a more proactive approach on our part will benefit us. Being in this group is a big part of being proactive.

Next steps are identifying the bug and seeing how the next CT and lung function tests look. Again, we have a long way to go but we are so happy to know there are resources out there to help us along the way.

Thanks again to all and I hope everyone has a happy weekend!

John

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Replies to "Hello again. Many, many thanks for all the responses to my post. The insights shared were..."

@tshubby , Hello John. Thank you for the update on your wife. They should have her sputem results ready by her next appt in eight weeks. If she doesn't already have a prescription for 7% sodium chloride, you may want to have her call her doctor and ask about it. It is a nebulized saline solution that really works wonders on helping to bring stuff up out of the lungs. It works by three ways. (1) it irritates the lungs just enough to induce deep cough (2) it moistens the phlegm to thin it; bringing it up easier (3) has anti-inflammatory properties. Many of us on this site are not infected at the moment, but, use this as a daily cleanse. It is also a good preventative measure in that it keeps the mucous thin so that it is not such a good environment for bacteria to take up residence. We wish your wife the best, please keep us posted on how she is doing. Maybe, when she is feeling better, she may want to get online with us.