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@jenniferb my heart aches for your husband. I am 63 and have suffered for years. When I was in my 30’s I stopped swallowing- lost 30 pounds in one month. The doctors all told me it was in my head because they could see nothing wrong with my throat - no tests were done! Thank goodness for medical advances. I was diagnosed with jackhammer esophagus this go round. I had the POEM procedure last week. 3 days post op I thought I was home free. Not the case now! The pain is pretty bad when I swallow! But I can feel a difference in my chest - I am hopeful no more esophageal spasms. I am going to add your husband to my prayer list. I know how difficult it can be.
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Hello dstb83bb. Thank you for your post ...I am just wondering how are you doing now ??? I have Jackhammer oesophagus and achalasia type 111 , and will be having P.O.E.M quite soon . I am, frankly terrified. I have been advised that my eosophogus will be paralysed after surgery, and that this is irreversible . I’m worried that I will have the surgery, and the spasms will still be there , and nothing has changed , other than the fact my oesophagus will be paralysed . I can’t even begin to think about what that might feel like ....I would love to have a discussion with you ????
Hello ...I have sent you a private message .. I do hope you’re well now, and as I am about to have the P.O.E.M, I would love to chat with you ???
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Thank you. All prayers are appreciated. After speaking with Margaret on here, and continuing to do more research, we are going to another practice. Unfortunately, even since two days ago, my husband is having food stuck and regurgitation again. He has shown signs of improvement, but not what was expected. One issue, we believe, is that the myotomy was only cut at 6cm. With his advanced state of Achalasia, it should have been much more. We are remaining hopeful that something else can be done.
Thank you for your prayers.