POEM Surgery for Achalasia
Hi everyone,
I’ve had achalasia that progressively got worse over the course of three years, to the point where I almost couldn’t eat without throwing up, and drank at least a liter of water with every meal. I just had a POEM surgery done in November (2017) with Dr. Robert Bechara in Kingston, Ontario. I wanted share my experience because, like many people here, before my surgery I scoured the web for hours trying to get an idea of what I should expect. I ended up being very anxious about the surgery, afraid that it wouldn’t work or even make things worse. I now know I fell victim to confirmation bias, since people are much more likely to post a bad experience rather than a good one, and I want to dilute that a bit.
Like many, I was first diagnosed with GERD and took Proton Pump Inhibitors, which obviously didn’t work. After a barium swallow, endoscopy, and mamotomy (ugh), I was correctly diagnosed with Type I achalasia and was lucky enough to be scheduled for POEM only three months later. Dr. Bechara and his staff were incredibly friendly, communicative, and accommodating to the fact that I lived out of province. Dr. Bechara studied in Japan, where the procedure was developed, and had a success rate of 100% from 100 patients that he’d done the operation on. Contrasting to how nervous I was, he seemed to almost be bored. In fact, the day I had my operation, he had another person getting it too. So, he’s a total expert. Do ask your doctor how many operations they’d done and if they had any complications, if nothing else it’ll put your mind at ease.
Three days before the operation I was on a fully liquid diet, which isn’t bad but really drains your energy. All I wanted to do was lay in bed and watch TV, so don’t plan any marathons. The morning of the surgery I was put on IV and right before the surgery I was knocked out and put on anaesthetic. All I remember is the count down, and the next thing I knew I was coming to in the post-op room. At first the anaesthetic was still working so I felt sleepy but great. As it wore off though, I started feeling a pain in my chest. Getting up was out of the question for at least a few hours, but they gave me a fantastic pink numbing liquid (Lidodan 2%) which worked wonders. I was pretty much bedridden for the next three days, and had almost no energy for anything. So take that week off work is my advice.
This pain remained for about three weeks, and, I’ll be honest, it really sucked. At first it was a constant dull pain that inhibited my breadth of movement and would only be subdued by the pink stuff. After about a week the pain became acute, which was worse. I would feel almost totally fine, and then this sharp stab would suddenly come on and I had to lie down wherever I was; always have your pink stuff (or Tylenol) on hand. I thought these was the spasms some people wrote about in blogs and was afraid it wouldn’t go ever away. I definitely had thoughts that this wasn’t worth it, and I should’ve just lived with the swallowing issues rather than inhibiting spasms. BUT, the pink liquid was awesome and it would calm the pain in about 30 minutes, and it did go away after three weeks. It became less and less frequent, and now totally gone. The pain is not that surprising really, they put a 17cm incision inside your body – its gonna hurt. After a week after the surgery I was able to work just fine.
Right now, two months post-surgery, I feel so incredibly grateful that I had the operation done. I can eat all my favourite food not only without throwing up, but with consuming only a small amount of water (often not even necessary). I’ve started feeling thirsty again, can eat until I’m full, and have finally started regaining the weight I’d lost. If you have a chance to do this operation, do it. And I would highly recommend Dr. Bechara if you have the opportunity. Good luck, and don’t give up hope!
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Hi Teresa. You communicated with me previously when I posted my POEM experience. I have been communicating with @jenniferb and she has requested to chat with me privately. How can we do that without posting our contact information on this discussion forum. Thank you for your assistance.
Actually, look me up on FB. Jennifer Blamy. Profile pic is of my husband and I. Send me a message on there and then I can give you my contact info.
@margaretmary To send a personal message .. click on the envelope at the top right of this page; Click compose towards lower left of page; type in user name you wish to contact.
Thank you.
Jenn, I'm not on facebook. I sent you a private message with my cell #. Margaret
Thank you for sharing. I just had a P.O.E.M. Procedure done. I wasn’t offered anything for pain. I’ve taken Tylenol but my first two days at home the pain wasn’t bad. Third day home and I get that stabbing pain I had before. It happens when I try to swallow. I was encouraged ( sorry) to hear you had pain. I guess I thought there would be no pain after a few days. So reading your account was encouraging.
@margaretmary thank you for your post. How are you doing now? I just had poem 3 days ago. I am experiencing some pain when I swallow. I am hoping to move to liquids with more choices.
Hello. I am doing very well. Thank you. Initially swallowing had some mild discomfort for me as well but the healing process takes a bit. The post op diet was most challenging to me because it was so limited and I felt so weak. Once you begin consuming soft foods you will begin to feel better. Returning to a normal diet and not having to consume mass quantities of water just to get the food down was a welcome change. POEM was an instantaneous restoration to my quality of life. I put on a few welcomed pounds. I went into surgery a bit underweight. I saw my surgeon for follow up and will have a routine endoscopy in April which is about two months post op and then yearly thereafter. I hope you continue to improve and feel stronger. Please let me know how you’re progressing. Good luck and good health.
I thought I was home free because the first 3 days I had very little pain. However the next day the pain started when I swallowed and sometimes just moving the wrong way. I was afraid I might have knocked a clip loose until reading about others pain here
@jenniferb my heart aches for your husband. I am 63 and have suffered for years. When I was in my 30’s I stopped swallowing- lost 30 pounds in one month. The doctors all told me it was in my head because they could see nothing wrong with my throat - no tests were done! Thank goodness for medical advances. I was diagnosed with jackhammer esophagus this go round. I had the POEM procedure last week. 3 days post op I thought I was home free. Not the case now! The pain is pretty bad when I swallow! But I can feel a difference in my chest - I am hopeful no more esophageal spasms. I am going to add your husband to my prayer list. I know how difficult it can be.